FUNDRAISING TIME (NO, NOT FOR ME)

...it's for the Maria Fareri Children's Hospital at Westchester Medical Center in Valhalla. My colleagues from WHUD are down there today and tomorrow for the annual radiothon benefitting the hospital.


Noodle did have a brush with a tough situation a few years back, with a condition that presents almost exactly like leukemia - which wasn't (can we get an "amen"?), but which was still plenty nasty and required more long hospital trips, tubes and needle-pokes than any little one should have to handle. She was dealt a lousy hand, but by no means the worst. So far there's been no need for her for a facility as advanced as MFCH, but one scary experience is more than enough to get this particular dad the rest of his life worrying about the what-ifs. There are far more harrowing stories involving kids from all over the Hudson Valley - thankfully, a great many of them have ended happily, and you've been hearing some of them on WHUD.


Having that hospital there in Westchester means sick kids in the Hudson Valley and their families don't have to add to their worries trying to negotiate New York City. MFCH doesn't even look much like a hospital...



Which is a highly reassuring first impression, both for parents and kids.


At any rate, the station is down there until Friday afternoon, the number to call to pledge is 1-888-499-KIDS, and here's the link to donate.

WHY, THOSE ROTTEN GOOD-FOR-NOTHING SPOILED BRAT KI-- HEY, WAIT

AWESOME job, guys:

They have most things kids their age want, the boys said. "We decided we want to give rather than get way too much," said Matthew, the older of the identical twins by 2 minutes. Last week, Mom and the boys were at Lloyd Town Hall and wondered why there was a line of people outside the building across Church Street. The people were waiting to get into the Highland food pantry of Ulster County Community Action. "So many people in this town are so poor," Andrew said. The boys didn't look the other way; they went across the street and inside. They looked at the half-bare shelves and saw a solution.

Themselves.

"It was our choice. Mom said we could have a little (regular) party or a big blowout party that donates," Matthew said. To the shock of their friends, they chose to donate. Now the boys have invited both their classes from Highland Elementary School, along with a few other friends and family, to their home Oct. 12.

The whole thing, you read it.

And for anybody in New York reading this, here's the links to many of the county-level groups who provide this kind of help.

HER REMISSION, YOUR MISSION

Great news for Noodle: her Henoch-Schonlein purpura is finally officially in remission after two and a half years of treatments and medication, and her kidney function is back to normal, and we can take her off the blood-pressure medicine.

Her whothewhat? is in remission?

Don't worry; it's what we said too after the doctors told us that she didn't have leukemia, but she did have this disease that, to the eye, presents almost exactly like leukemia, but is so obscure it needs a name in German and Latin. It ain't fun. To oversimplify, your kid gets a cold, and then a week or so after it's over their immune system for unknown reasons is still looking for something to do, like it's got a case of the Reggie Hammonds: Let's see...what we can (mess) with next. And goes after the small blood vessels in the knees, ankles, elbows, intestines...and kidneys. It gets ugly on the inside and the outside (warning: graphic).

Flashback to spring '06. Most cases of HSP go away on their own in four to six weeks. No sweat, said Noodle's doctors. The kidneys are only affected in one out of ten cases.

Her kidneys were affected.

Still, not to worry - the kidneys only fail in one out of a hundred cases.

Um, yeah. Great. Bartender? Double scotch, straight. And a hug.

Those abdominal pains could be intussusception. Better get her up here.

We're in the spelling bee from hell now, too. Intussusception is when the intestine tries to fold in on itself. Potentially fatal if things get jammed up and infected. And "up here" was the emergency room up at Albany Medical Center, the closest place equipped to deal with Noodle's situation. It's a super place on a Friday night. Only one gunshot wound that evening. In the end, it was just some nasty inflammation down there so we got to go back home.

But we got real familiar with Albany Med over the next couple of years. Kidney biopsy (CHRIST, THAT'S A HUGE NEEDLE), blood tests, urine tests, yummy barium-schmutz drinks, x-rays, weekends of infusion therapy with massive steroid doses, delightful hospital cuisine, and our little girl was a champ through the whole thing. We almost forget that she was just two when all this started, and now...fingers crossed, everybody...it may just really, truly, be over and done with, maybe, we hope.

At any rate, if you're somebody like us who gets to 9/11 and gets the impression they should be doing something useful to the rest of society on the day but damned if they know what, you could do worse than to drop a little something in the bucket over at the Vasculitis Foundation, which does research on HSP and a passel of related diseases in the charming vasculitis family. If that doesn't strike your fancy, try www.mygooddeed.org, which can point you to local charities who could always use a spot of help.